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Introduction:
II must have been showing off the day I met Posie
Churchill. I had been invited to visit the Rehab floor of Massachusetts
General Hospital (MGH) for a peer visit, which is where an amputee
visits others in their hospital beds. My amputation had been performed
there at MGH in Boston in 1971. That day in 1975, I was showing
three young men who had just lost limbs how a person on one leg
can ski. Balancing over my right leg, arms at my side, I stood
up straight, facing them, and held my crutches off the ground.
“
Imagine the outrigger is like a crutch with a 12-inch ski tip at
the end. Okay? Even though it’s called three-track skiing,
you really don’t ride all three ski tips over the snow,” I
said, explaining that you ski on your one leg and use the outriggers
when you needed them to stabilize your balance. “Eventually,” I
added. “When you get good.” I looked pretty good standing
there. But I was not good enough to just “ski my ski” back
then.
I was interrupted by Muffy Lutzin, a pixie-size woman with dark
hair and bright eyes whom I knew as a volunteer from the handicap
ski group and who was also the hospital’s recreational therapist. “Cale,
there’s a wonderful woman in the next room who would love
to meet you.”
Before I went in to meet the woman, I set my crutches against
the wall and showed the boys how you turn your ski. I balanced
over
my one leg, holding the imaginary ski poles. “You keep your
knee bent for flexibility.” To demonstrate compression, I
bent my knee, dropped my hands down to my sides, and turned my
knee in either direction, pretending I was skiing. My audience
was captivated.
At 24, I practiced yoga and with good balance and a very strong
leg, I could swing dance or polka all night — with the right
partner — which may be how I developed my strength in the
off-season. The year after I graduated from college, I made at
least a dozen amputee hospital visits while I looked for a job
and continued into my third year of three-track skiing. My own
amputation had been done here in Boston at MGH, and I was proud
of the young woman survivor I had become.
I had a trick move I called sidestepping, where, for quite a
distance, I “walked” laterally, without crutches, using a shimmying
toe-first, then-heel maneuver. The day Muffy interrupted me, I
was so comfortable in my strength that I left my crutches behind,
sidestepped into the other room across the corridor, and met the
beaming Posie Churchill.
“
I’m so glad to meet you, Ca-el,” she said in her thick
Boston Brahmin accent.
I side-stepped up to her hospital bed, leaned into
it to steady my balance, and extended my hand, for this once without
the
crutch interference. “Muffy says you’ve skied all over Europe,
Switzerland, and the Alps,” I said to the 65-year-old.
Posie spoke in a voice both tremulous and strong, “But I
didn’t think I would ever ski again after the amputation.” Muffy
then explained that even at Posie’s age, once she was
strong enough, she could come up to Sunapee, New Hampshire,
and join the
ski gang.
“
Tell me, how do you do it?” Posie asked, grinning with a
toothy, girlish smile. “
It should be easy if you’ve done it before!” I began.
At that point I wished I had some outriggers. Once again I
demonstrated the position on my imaginary ski
“
As soon as I heal, I’m going to learn these things called
outriggahs,” Posie said emphatically, and then she looked
over at Muffy, and chuckled deeply as an afterthought. “I
suppose, after I learn to use a pros-te-the-sis.” Coming
to Posie’s aid, Muffy and I chimed in on the pronunciation
of “pros-thee-sis,” and we all laughed about what
trouble that word caused most people. After I’d stood long enough, I excused myself and went back
to get my crutches and leave. Hospital visiting could be hard work.
But it was part of the ethic of the New England Handicapped Sportsmen
(NEHSA) who provided peer visits to hospitals. Many NEHSA members
were Vietnam vets who returned from war as amputees and caught
the ski bug, quickly becoming full-blown ski bums and instructors.
The NEHSA folks had volunteered to teach me several years before,
and a lot of hours and several amputee instructors standing around
on one leg went into that proposition. It included fitting me for
gear, skis and outriggers, and teaching me to control my speed
by turning — the hardest thing to do once a neophyte
makes it to the top of the hill. NEHSA regularly held race
clinics because
the elaborate setup of gates as obstacles forced the beginning
skier to turn. They would offer the same benefits to Posie.
In a matter of months after meeting the older woman, while
I looked for a job and was fit for my first artificial leg,
I decided
to
move from Boston to Colorado. I didn’t see Posie again
until several years later, when she showed up in my new home
town of
Winter Park, all smiles in vintage skiwear at the National
Handicapped Ski Championships. For years, skiers from across
the country gathered
there to race and celebrate. In my exciting get-together with
old friends from Boston, I heard that the older woman had been
quite
impressed with me. My amputee friend laughed mockingly as she
told me the story. “
Isn’t that Cale Kenney something?” Carol reported Posie
saying when the new NEHSA brochure with my picture on the cover
was distributed.
“
What about her?” Carol asked, not about to give me any celebrity
status I might have gained by moving away.
“
She doesn’t even wear an artificial limb!” Posie exclaimed.
“
What’s so amazing about that?” Carol exclaimed. She
had just given up wearing her own hemipelvectomy leg and was getting
around more freely now. She may have been a little miffed about
the NEHSA bias toward people wearing artificial limbs. Few people
had any idea of the special problems of the hemipelvectomy prosthesis,
never mind the price. (Most didn’t know the difference between
us and a hip-disarticulation, who still has both sit-down bones.)
However, Posie had an image of me she’d formed from our first
meeting, and she was surprised Carol wasn’t in awe, too.
“
But, she doesn’t even use crutches!” Posie said.
Even I laughed at that idea, with the image of myself pogo hopping
through my life. I just love this story — because I’m the hero, of course!
But really, because it is so ironic. Wonderfully, it carries the
spirit of what those first days of learning to ski were like. The
slogan for National Handicap Sports (NHS), the national organization
of which NEHSA was a chapter, is: “If I can do this, I can
do anything.” The way it worked for me was: “If they
can do it, I should be able to do it.” Yet, there is
always a shadow side: the image you learned to project could
trap you
into an image that betrayed you. Or made others feel you had
betrayed them.
Telling my story in those days invited showing
off how far I’d
come. Yet other times it was appropriate to just show up and visit,
and answer questions before and after surgery, especially for someone
with cancer — or osteomylitis or another disease — who
had time to think before amputation. In these cases, I’d
tell a more modest story of wholeness and survival. But each visit
became a healing when we shared our stories. I vividly remember
one visit where I was called in — not for the patient
but for the staff.
The patient, a lovely young girl from the town
next to mine, had been taken on a harrowing ride
by the
drunk
driver of
a motorcycle, who caused them to be broadsided
by a car. Her
injuries did not
involve amputation from gangrene like mine; her
pelvis was split open and now held together by
a Hoffman
device, a steel
contraption
with pins that went through flesh, so the bones
could knit back together. She still had her parts
but was
in excruciating
pain.
I was called in because “she cries all the time.” A
psychology supervisor invited me to speak to the unit nurses who
had become so demoralized by her suffering that they allegedly
became callous to her cries for help. The psychologist lectured
on the language of crying. Some cries both express pain and relieve
it, she explained. Grief had a different sound to it, and yet another
pitch signaled a call for help. The nurses were asked to “listen,” translate,
and respond accordingly. Realizing my long period of misery was now the
past — except
for phantom reminders — I called up the memories of my hospitalization
and shared with the staff how I’d cried with as many
messages. When I spoke of the pain, I was awed and humbled
by my role as
a witness to the nurses.
When I went in to meet Patty, she asked, “Were you once really
like me?” I nodded, speechless. Seeing her lying in her
bed, three months longer than my stay, the flesh wounds seeping,
I concluded
that my losses shortened my time of suffering. I felt lucky
when I first went to meet her.
I admired the way she came right out with it, but
it didn’t
make it easy to answer her when she asked. “Did it feel like
you fell on to the bar of a boy’s bicycle?” I nodded,
and I didn’t feel lucky anymore, because right there I broke
through something. I couldn’t put it into words yet,
but I felt like a hole had been blown right through the middle
of me.
It was the only peer visit where I left with a dark foreboding.
I sensed more grief ahead.
[Later, I learned as I aged that the human skeleton
must compensate for the loss of the pelvis; usually
by developing
a scoliosis,
and in my case chronic back pain, but in 1999,
I paid with injuries to my arms, simply because
without
the
second
sit-down bone,
you have to hold your body upright with help from
your arms and hands.
Thus, the upper extremities are more susceptible
to “overuse” injuries.]
I was protected from the knowledge of these future realities
by my youthful arrogance and denial for at least ten years.
Many years later, when I no longer had time or
energy for these hospital visits, my stories became “written visits.” I
stopped doing hospital visits in the ’90s. Thereafter,
when therapists who saw me as the epitome of rehabilitation
asked me
to visit one of their patients, I sent one of my adventure
stories.
I may never have written the stories that form
Part II of this book, “The Adventures,” had I not been knocked on the
side of the head by a synchronistic event. After a reconstructive
surgery in 1987, I was left with a higher level of nerve pain.
It got so bad I wondered why I’d been spared in 1971. My
quality of life suffered greatly. In 1992, I met the first of my
many angels, Charlene Campbell, the woman who’d saved my
life on the road 20 years before. Charlene is the “voice” in
chapter two that reached into the darkness and told me I was
alive, and not in hell as I feared. I view this book as an intimate witness in “Part I, The Impact.” I’m
back to showing off in “Part II, The Adventures.” I
hope amputees can relate to both.
Meeting Charlene inspired me to change my code
of silence about my accident. As a journalist writing
a first-person
piece,
crutches, frankly, were a distraction. Every crutch
begs to tell a story,
and I didn’t want to distract the reader. I always assumed
the viewpoint of a bi-ped. However, after meeting Charlene I asked, “Why
not write down all those stories about the calamities I’ve
had on crutches that have made my friends laugh?” So for
the last ten years, besides teaching and freelance publishing,
I’ve been a storyteller about “the glory days” and
my misadventures as a one-legged enthusiast of the outdoors. As I write today it is from my “bedmobile,” with voice
recognition software for typing and crutches for short distance
walking. But as soon as I get a sit-down prosthesis that works,
I’ll begin a new series of travels from a power wheel
chair.
The last story is called “Calamity Jane,” my nickname
in middle school, whose mention provoked shame because the calamitous
stories that earned the moniker covered up the truth of a troubled
home and my anguished, bumbling efforts to get to my new middle
school on time. It wasn’t until I was an adult and read the
real Calamity Jane’s autobiography that I realized being
compared to this female pioneer was a compliment. Born 100 years
apart — she in 1852 and I in 1952, — we both went
west. We both pushed the limits of our gender and person. I
could identify
with her love of adventure and the outdoors, and with her strong
desire to venture beyond the conventional into a new frontier.
And just as strong, her desire to write about it.
Finally, I included pictures because I think it’s fun to
find pictures in books about real people. I called Posie Churchill
the other day. She’s 91, and though she didn’t remember
my name, she told me she wished she did. I asked her if she remembered
skiing with me. “No, but I wish I were skiing now,” she
said, not missing a beat. Then she added, “Your voice has
invigorated me. Do you think we could call each other and get reacquainted?” That’s
Posie.
I love the people I’ve met on this path of accidental adventure:
NSCD, ACA, NHS, caregivers everywhere. This book is dedicated to
them and to my old friend Fred Tassone, who knew how to have fun
and liked to say, “Nobody said it was going to be easy.” And
he proceeded to make it look that way.
howlings@ecentral.com
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